Being told that you have Alzheimer’s can set off a range of emotions in you and your loved ones. You may be outraged that you’ve been diagnosed with a hfe-threatening illness, saddened by the loss of a once powerful intellect, or frustrated by your inability to perform as you once could. Or, just as likely, you could feel all three emotions at different times. All of these reactions are very normal responses to a diagnosis of Alzheimer’s. How you choose to cope with them how¬ever, can make a big difference in how you adapt to your condition. DENIAL You do not want to admit that you have a chronic disease, so you tell yourself that everything is okay. You feel fine. You can still handle money, drive the car, and go to the store. You can still carry on a conversation with your friends and do your job fairly effec¬tively. But deep down, you know it’s becoming more difficult to perform these everyday tasks. In short, you may be in denial. This simple strategy has enabled many of us to get through some of life’s most difficult circumstances. For instance, we might deny that we’re unhappily married in order to avoid the economic hardships that can come with a painful divorce. But in some people who have early Alzheimer’s, what may appear to be denial to outsiders may in reality be a lack of awareness of the ill¬ness. You may simply be oblivious to your diminished faculties and compensating in ways that you don’t find bothersome. According to Daniel Kuhn, author of Alzheimer’s Early Stages, personal awareness of Alzheimer’s fluctuates in the early phases of Alzheimer’s Disease, but is generally lower than might be expected because of the effects of the disease. “Most people don’t dwell on their impair¬ments or they find ways to excuse them,” he writes. Instead, they begin to gradually adapt to their condition by accepting their limi¬tations and lowering their expectations. But to the outside world, these people may appear to be in denial of their illness. It’s easy to understand why someone would want to deny that they have Alzheimer’s. And in many cases, it’s okay to be in some denial as you gradually come to terms with your condition. But if your denial is jeopardizing your health and safety, then you may need to talk to a social worker, your physician or a close family member or friend. The sooner you come to terms with your diag¬nosis, the sooner you’ll learn to live with it. ANGER Perhaps you are outraged to discover you have Alzheimer’s, espe¬cially if you’ve been vigilant about your health. You may feel that life is unfair, and that you’ve already had your share of trauma. You may be outraged at the fact you can no longer balance your check¬book, drive to the mall, or follow a simple recipe. Anger over something you can’t control is a normal emotion, one you’re likely to experience at least on occasion when you have Alzheimer’s. The constant presence of an incurable disease can make anyone angry and bitter. As a result you may become easily irritated, even with loved ones who are trying to care for you. If you find yourself frequently angry, try to pinpoint the source of your anger. Maybe it’s the feelings of helplessness. Or maybe you hate the way you can no longer participate in conver¬sations with ease. Perhaps you don’t like feeling different from other people. Talk to your caregiver, a social worker, or a friend about your feelings. If you can, keep a log to vent your anger. Consider joining a support group with other people who have Alzheimer’s. You will certainly discover that there are plenty of others who share your anger about having this disease. What the Caregiver Can Do Whether your loved one shares your feelings with you or not, you will know that he is angry if he is irritable, sullen, and withdrawn. These are emotional cues that suggest inward anger, even if the patient is not outwardly ranting. To help ease his anger, let him voice his displeasure without any comments from you. Don’t give him difficult tasks that may cause confusion, which will only upset the person. At the same time, don’t insult him by giving him tasks that are so overly sim¬ple they seem condescending. Also, speak slowly and clearly, and never talk about the patient in his presence as if he’s not there. Don’t barrage him with too many questions at a time, which can be overwhelming. Avoid star-ding the person. Offer help subtly when he appears to need it, but don’t automatically assume a lack of competence. If the person erupts in a tirade, invite him out for a walk that might help him cool down. Frequent episodes of anger may actually be a symptom of de-pression. So be on the lookout for other signs of depression, such as withdrawing, crying, persistent sadness, and feelings of worth-lessness. Depression can be treated, which may alleviate some of the anger and hostility.

Whether someone with Alzheimer’s can still hold a job during the early stages of the disease depends a great deal on the type of job he holds. A job that doesn’t demand a lot of concentration, memory, and communication skills may still be doable for a while. But if you have a job that requires a lot of concentration, skill and memory and where the health and safely of others are at risk—bus drivers, pharmacists, and nurses, for example—you might have to stop working pretty quickly.

Anyone who is diagnosed with Alzheimer’s has to confront the reality that you may have to stop working before you’re ready to retire. Alzheimer’s causes changes that can affect many aspects of your work life. You may have difficulties remembering and following directions, trouble concentrating and, and possibly even problems getting safely to and from the office.

To figure out what needs to be done, start by talking to your employer about your diagnosis. Some employers might offer to switch you to a less demanding position, cutting back your hours, or giving you responsibilities that are less taxing. You should also talk things over with your physician and find out how long he thinks you can continue working. Other tips about making job decisions from the Alzheimer’s Association include:

• Decide with your employer who else needs to know about your diagnosis. Should you tell co-workers? Clients?

• If you do decide to tell your co-workers, let them know that you may become frustrated with yourself when you can’t remember information and that, in turn, may become frustrating to them.

• To help you do your job better, use reminders, memos, and a calendar.

• Look into early-retirement options.

• Research your company’s employee benefits to see what may be available to you. People who have Alzheimer’s are entitled to the same retirement and disability benefits as a person with any other disabling condition. Remember, Alzheimer’s is a disease.

• When you do stop working, find an activity you enjoy to take the place of your job. You might also consider doing volunteer work or taking up a new hobby.

What the Caregiver Can Do

Working is a fundamental part of our lives and central to who we are and how we feel about ourselves. Not being able to do your job can be very upsetting, especially in the face of an illness you can’t control.

Help your loved one determine if he can still do his job and whether he really wants to keep working. Retiring prematurely can be distressing to anyone, but may be especially so for someone suffering a dementia like Alzheimer’s Disease. If your loved one does stop working, help him find a hobby, activity, or volunteer work to fill his time and help give his life meaning. If necessary, seek out a social worker or counselor to help him get through this period.

Leave a Reply

Your email address will not be published. Required fields are marked *